Summary
Sick Cells is hiring a dynamic and mission-driven contractor to manage its Faces of SCD program. Sick Cells is a national advocacy nonprofit dedicated to amplifying the voices of the sickle cell disease (SCD) community and driving systemic change. Through storytelling, advocacy, and policy engagement, we elevate the lived experiences of those affected by SCD, influence health policy, and promote health equity.
Description
Position Title: Faces of SCD Program Contractor
Reports To: Chief of Staff and Operations
Contract Type: Part-Time, Independent Contractor
Rate: $25-$30/hour
Estimated Hours: 20-25 hours per week
Contract Term: October 2025 – TBD
This position manages and grows Sick Cells Faces of SCD Storytelling Program. The Programs Manager works collaboratively in project programming, engagement and outreach, and communications.
Preference will be given to individuals who can spend one day a week in Sick Cells’ Wheaton, IL office.
The contractor will provide the following services:
- Manage and implement the full cycle of Sick Cells’ Faces of SCD Storytelling Program, including planning, participant onboarding, strategic content development, and engagement strategy.
- Work closely with individuals living with SCD and their families to facilitate compassionate, authentic, and empowering storytelling.
- Manage and track participant stories and ensure they are aligned with Sick Cells' advocacy, awareness, and media initiatives.
- Lead the creation and dissemination of campaigns to educate and empower the SCD community.
- Coordinate timelines, deliverables, and logistics across campaigns and key awareness moments.
- Draft and edit storytelling materials, blogs, newsletters, social media content, advocacy toolkits, and promotional materials.
- Foster and expand relationships with ambassadors, advocates, and partners.
- Coordinate program deliverables, timelines, and grassroots campaigns.
- Represent Sick Cells at advocacy events, coalition meetings, and conferences.
- Plan and execute 1–2 large-scale storytelling efforts annually.
- Contribute to grant writing, fundraising initiatives, and relationship-building with funders and partners.
Qualifications
- Bachelor’s degree and 3-5 years of relevant work experience, OR an Associate’s Degree or certification and 7+ years’ work experience.
- Demonstrated experience in program coordination, public health, advocacy, community engagement, or related fields.
- Experience organizing projects independently.
- Experience in digital communications, including social media, graphic design tools (i.e. Canva), email newsletters, and presentation decks.
- Comfort and desire to develop public speaking skills.
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