Part-time Contract Position (Approximately 20hrs. per week) with potential to Full-Time within 12 months

Virtual – work from home

Domestic Travel – 4 – 6 times per year

 

Job Summary: 

The Coalition of Skin Diseases seeks a part-time Executive Director to manage the organization’s financial growth, program development, and day-to-day administration.  The person hired will work independently – yet closely with the Board of Directors to lead the organization to its next stage in its life cycle. Periodically, the Board of Directors will reevaluate this position as the responsibility/time commitment grows with the potential to become a full-time position. The Board and other volunteers will remain involved and transition roles and responsibility to ensure a smooth transfer of information. 

 

Background of Organization: 

The efforts of the Coalition of Skin Diseases (CSD) aim to ensure that all Americans living with dermatological diseases and skin traumas receive the care they need to live healthy and productive lives. By working independently, in coalition and alongside advocacy organizations and stakeholder groups, the CSD aims to be at the forefront of progress toward a day where all individuals affected by skin disease have access to life changing treatments and high-quality care. 

Combining the needs, strengths and experiences of patient advocacy organizations across dermatology into one collective effort streamlines the narrative, puts structure around strategies and can change lives. , The CSD cohesively brings one voice to decision makers,raising awareness to the debilitating nature of dermatological disease and supports the removal of barriers to access, treatment and research. 

The organization was incorporated on January 23, 2007.  The Coalition of Skin Diseases and its services and accomplishments can be credited to the long-term efforts of a volunteer board,  member organizations, and work of many organizational leaders. This will be the first Executive Director position of the Coalition of Skin Diseases.

 

Recent successes:

  • Successful recruitment and engagement of member organizations – adding 6 in the last year 

  • Engagement of  a proactive, passionate volunteer Board of Directors 

  • Development of a transitional strategic plan

  • Active participation in legislative efforts of the American Academy of Dermatology, including annual AADA Legislative Days

  • Continued member mentorship and training programming

 

Responsibilities:

This position requires the ED to:

  • Develop new sources of funding to grow and enhance sustainability

  • Manage the deliverables associated with funding

  • Manage current program activities and develop new programs to serve the member organizations and enhance visibility of the Coalition

  • Cultivate and maintain relationships with similar nonprofit organizations and affiliated professional groups.

  • Attend both face-to-face/virtual meetings of the Board of Directors and participate in additional conference call meetings as needed.

  • In conjunction with the Board of Directors and Treasurer, prepare and administer the budget and all organizational filings.

  • Review and approve all expenditures and ensure that the financial affairs and records are administered and maintained in accordance with the organization’s  policies and accepted accounting procedures.

  • Should additional staff be hired, administer all functions for any contract staff including employment, supervision, performance and salary reviews, work assignments, and training. 

The ideal candidate will have: 

  • Advanced degree or equivalent combination of education and experience with an emphasis in business or non-profit management, fundraising, program development, and advocacy.  

  • Knowledge of skin diseases and advocacy, or experience with other disease patient organizations

  • A history of fundraising success 

  • Proven ability to communicate, advocate, and negotiate with government, civic, business leaders, patients, and the medical community.

  • Ability to travel to conferences across the United States 

  • Outstanding leadership, interpersonal, and team building skills.

  • Passion, energy, independence, and initiative.

  • Excellent oral and written communication skills.

Salary: Commensurate with experience  As a contract employee benefits will come in the form of flexible work hours and location as well as some paid holidays.

Location:  The current office is located in Washington, DC.  We will consider applicants from any geographical area as the position will be remote.  

Visit our web site at https://skincoalition.org/

 

E-mail or send resume, cover letter including salary requirements, and contact information for three references by June 30, 2021 to: 

Holly Priebe

Treasurer 

holly@coalitionofskindiseases.org 

 

Coalition of Skin Diseases

4301 Connecticut Avenue, Suite 404

Washington, DC   20008

Share this job listingShare on LinkedInTweet about this on TwitterShare on FacebookEmail this to someonePrint this page