Summary
Description
Executive Director
Bleeding Disorders Alliance Illinois (BDAI)
bdai.org
Location: Fully remote*, must reside in Illinois
Full-time exempt: 40 hours per week
Salary: $90,000+, commensurate with experience
Benefits: Paid vacation days, paid sick days, stipend for health insurance, possible
stipend/reimbursement for remote work expenses, including technology expenses
About the Organization
BDAI is a nonprofit organization whose mission is to improve the quality of life for the
inheritable bleeding disorders community by supporting individuals and their families with unbiased
information and resources which allows them to live healthy and active lives. Since 1949, BDAI has
provided trusted resources, education, advocacy, and community support to help individuals lead
healthy and active lives.
The Executive Director is responsible for the management and supervision of all operations in accordance with the intent of the board of directors and consistent with the organizations bylaws and state regulations.
Core Responsibilities
Job responsibilities include, but are not limited to:
• Providing daily management of the organization with small staff of two or more part-time
and/or full-time employees, ensuring operational continuity and financial oversight.
• Maintaining strong relationships with key stakeholders, including pharmaceutical partners, clinicians, patients, and peer organizations.
• Being responsible for the planning, coordination, and direction of the organization’s operations
and programs.
• Prioritizing fundraising to grow programing and services for the community.
• Overseeing and reporting on the organization’s activities for the board of directors.
• Ensuring that services and funding relationships are robust enough to meet or exceed strategic
goals and objectives.
• Coordinating and leading the annual budget evaluation and development, monthly budget reviews,
and periodic forecast updates.
• Additional duties as assigned.
Qualifications
Education and Experience
• Bachelor’s degree preferred with 5-7+ years of leadership experience in a nonprofit setting
• Proven successful experience in fundraising, budgeting, and organizational management
• Experience working with boards, volunteers, and community stakeholders
Skills and Competencies
• Strong leadership, strategic thinking, and decision-making abilities
• Excellent communication and relationship-building skills
• Creative problem-solving skills
• Financial acumen and operational management expertise
• Project management and organizational skills
• Ability to work independently while managing multiple priorities
Preferred Qualifications
• Proven success record of cultivating major donor portfolio
• Bilingual (Spanish) is a plus
• Working knowledge of content management systems and social media
Work Environment and Expectations
• Fully remote*; must reside in Illinois
• Full-time (40 hours per week), including 3-4 nights or one weekend a month
• Travel required for in-state events, community outreach, and occasional national conferences
• Regular interaction with stakeholders, partners, and community members
• Occasional lifting of materials and supplies for events
How to Apply
Please submit your resume and cover letter detailing your relevant experience and interest in
working at Bleeding Disorders Alliance Illinois to board@bdai.org.
* Subject to change
